This research aims to describe the facts and situations lived by the parents regarding the birth and the hospital admission of their newborn child with Hypoxic-Ischemic Enchephalopathy (HIE) in the Neonatal Intensive Care Unit (NICU) in order to identify the information needs and the assistance to the families, to be able to develop and add the improvement elements for the holistic care during the treatment at the NICU.


  • To develop a guide to provide information and support for the families and improve their care in the NICU.
  • To understand the values and beliefs of the parents regarding the admitance of their children with HIE and the treatment in the NICU.

  • Principal Investigator: Alfredo García-Alix
  • Research Group Members: Veronica Violant
  • Funding Entity: Ministerio de Sanidad y Servicios Sociales
  • Collaborating Entity: Agència, Informació, Avaluació i Qualitat en Salut (AIAQS) and Fundació Sant Joan de Déu
  • Duration: 2012-2013


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