This guide aims to offer information and practical orientations to families with children that suffer from congenital heart disease about questions related to the illness, with the ultimate goal of easing their adaptation to the different daily situations, as well as giving an answer to the different reactions of the family members to this illness.

The content of the book is the outcome of a research in which we asked to children that suffer from this particular heart condition, to their families and teaching professionals to know first-hand their needs, perceptions and experiences.

Through this guide different examples will be shown that reproduce real situations according to the protagonist aiming to illustrate from their point of view the different processes involving congenital heart disease.